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Interpretation of a malady: how scientists zeroed in on one family's rare and crippling disease

posted Jun 7, 2017, 11:20 PM by Vinod Scaria   [ updated Jun 7, 2017, 11:21 PM ]
The poignant story of an Agra family, where six children have the Nalband mutation. Reports on how a group of scientists linked it to a rare and crippling neurological disease .

It’s been two years since Mohammad Nazir, 44, petitioned the government that six of his children be euthanised. Nazir and his wife Tabassum’s desperate plea to terminate the lives of their children was preceded by 15 agonising years of watching six of their eight children debilitated by a malevolent disease that destroys their neurons and steadily wastes away their muscles.